Family stories
Nathan’s Story: A Decade of Care and Support
Nathan was born in 2011 and was diagnosed with Prader-Willi syndrome shortly after birth. This rare genetic condition is severely ...
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Roman’s Story
At only a few days old, Roman was diagnosed with Alagilles Syndrome, a rare genetic condition that can cause various complications. ...
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Toby L’s story
'Helen & Douglas House gave us the chance to become active parents again, which is something that we had not thought possible ...
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Jasper’s story
Jasper, from Windsor, was born prematurely at 29 weeks old on 17th December 2014. He was born by emergency C-Section after doctors ...
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Daniel’s story
Daniel was diagnosed with Sarcoma Cancer in December 2020 – he was 15, nearly 16. It all started with an achy leg, which the family ...
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Neve’s story
We began caring for Neve and her family in October 2020 after she was diagnosed with an incurable brain tumour. She was referred to Helen House for palliative care to help with her symptoms, and then for more support once it was apparent that her treatment was not working. Neve continued to visit Helen & Douglas House until her death, at home, in April 2023.
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Lily-Mae’s story
Lily-Mae, from Witney, was born in 2013. At two years old she was diagnosed with Rett Syndrome, which caused regular seizures and other complications
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Pippa’s story
Pippa, from Maidenhead, was born in 2013. She was born with Down’s syndrome and, as she got older, developed other conditions that cause seizures and further complications.
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Aliza-May’s story
Aliza-May was born in June 2017 with a rare syndrome called Edwards. For the first week of her life Aliza-May’s Mum Emma-May and Dad Ross lived in the special care baby unit where every test under the sun was done.
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Max’s story
Max, from Swindon, has been coming to Helen & Douglas House since 2014. Max was born in 2007 and has mitochondrial disorder, a condition which means he requires 24-hour care and support.
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Ollie’s and Ben’s story
Mike tells us about being a dad to twin boys, Ben and Ollie. Both boys were born with a life-shortening condition
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Toby’s story
Toby lives at home in Buckinghamshire with his mummy and daddy, Kim and Tim. He has a complex neurological condition called Dravet ...
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We need to raise £6 million each year to care for local terminally ill children at the hospice and at home.